While welcoming the 79 per cent increase in funding for blood transfusion services under the National AIDS and STD Control Programme, she said that without the implementation of mandatory Nucleic Acid Testing (NAT) for blood screening, transfusion-dependent thalassemia patients remain at risk of contracting life-threatening infections such as Hepatitis B, Hepatitis C, and HIV.
She said it is a national imperative to launch a Thalassemia Bharat Mukt Abhiyan in such a situation.
“The rising burden of thalassemia necessitates a dedicated national mission – Thalassemia Bharat Mukt Abhiyan, which should focus on mandatory NAT testing for blood transfusions, ensuring the highest standards of blood safety by implementing NAT across all blood banks to eliminate the risk of transfusion-transmitted infections. Safe blood is not a privilege, it is a right.”
She said the campaign will help in universal screening for carrier detection. “Integrating thalassemia screening into national health programs and premarital health check-ups to curb the spread of this genetic disorder.”
She said there is a need to increase funding and medical infrastructure for curative treatments to offer long-term solutions to patients. The campaign will also ensure accessible and affordable care for thalassemia.
Taneja-Mukherjee said the government should ensure lifelong, cost-effective treatment for thalassemia patients by incorporating its management under Ayushman Bharat and PM-JAY.
Beyond increased budgetary allocations, a dedicated Thalassemia Blood Transfusion and Management Programme is essential to enhance the availability and quality of care.
Stressing that the time for action is now, Taneja-Mukherjee said the Union Budget 2025-26 underscores India’s ambitious healthcare vision. Still, the country cannot afford to neglect that India is the thalassemia capital of the world.
“While billions are being invested in medical tourism and cutting-edge healthcare initiatives, thousands of thalassemia patients continue to struggle for safe blood transfusions and accessible treatment. It is time for a decisive national campaign – Thalassemia Bharat Mukt Abhiyan, backed by stringent policies, mandatory NAT testing, and robust carrier screening programs. Without immediate action, thalassemia will remain a lifelong burden for thousands of families,” the open letter said.
“TPAG stands committed to working collaboratively with policymakers, medical professionals, and stakeholders to realise the vision of a thalassemia-free India,” the letter said.
