Illness took away her voice, AI created a replica she carries in her phone

But Bogan and a team of doctors at Rhode Island’s Lifespan hospital group believe they’ve found a use that justifies the risks. Bogan is one of the first people — the only one with her condition — who have been able to recreate a lost voice with OpenAI’s new Voice Engine. Some other AI providers, such as the startup ElevenLabs, have tested similar technology for people with speech impediments and loss — including a lawyer who now uses her voice clone in the courtroom.

“We’re hoping Lexi’s a trailblazer as the technology develops,” said Dr. Rohaid Ali, a neurosurgery resident at Brown University’s medical school and Rhode Island Hospital. Millions of people with debilitating strokes, throat cancer or neurogenerative diseases could benefit, he said.

“We should be conscious of the risks, but we can’t forget about the patient and the social good,” said Dr. Fatima Mirza, another resident working on the pilot. “We’re able to help give Lexi back her true voice and she’s able to speak in terms that are the most true to herself.”

Mirza and Ali, who are married, caught the attention of ChatGPT-maker OpenAI because of their previous research project at Lifespan using the AI chatbot to simplify medical consent forms for patients. The San Francisco company reached out while on the hunt earlier this year for promising medical applications for its new AI voice generator.

Bogan was still slowly recovering from surgery. The illness started last summer with headaches, blurry vision and a droopy face, alarming doctors at Hasbro Children’s Hospital in Providence. They discovered a vascular tumor the size of a golf ball pressing on her brain stem and entangled in blood vessels and cranial nerves.

“It was a battle to get control of the bleeding and get the tumor out,” said pediatric neurosurgeon Dr. Konstantina Svokos.

The 10-hour length of the surgery coupled with the tumor’s location and severity damaged Bogan’s tongue muscles and vocal cords, impeding her ability to eat and talk, Svokos said.

“It’s almost like a part of my identity was taken when I lost my voice,” Bogan said.

The feeding tube came out this year. Speech therapy continues, enabling her to speak intelligibly in a quiet room but with no sign she will recover the full lucidity of her natural voice.

“At some point, I was starting to forget what I sounded like,” Bogan said. “I’ve been getting so used to how I sound now.”

Whenever the phone rang at the family’s home in the Providence suburb of North Smithfield, she would push it over to her mother to take her calls. She felt she was burdening her friends whenever they went to a noisy restaurant. Her dad, who has hearing loss, struggled to understand her.

Back at the hospital, doctors were looking for a pilot patient to experiment with OpenAI’s technology.

“The first person that came to Dr. Svokos’ mind was Lexi,” Ali said. “We reached out to Lexi to see if she would be interested, not knowing what her response would be. She was game to try it out and see how it would work.”

Bogan had to go back a few years to find a suitable recording of her voice to “train” the AI system on how she spoke. It was a video in which she explained how to make a pasta salad.

Her doctors intentionally fed the AI system just a 15-second clip. Cooking sounds make other parts of the video imperfect. It was also all that OpenAI needed — an improvement over previous technology requiring much lengthier samples.

They also knew that getting something useful out of 15 seconds could be vital for any future patients who have no trace of their voice on the internet. A brief voicemail left for a relative might have to suffice.

When they tested it for the first time, everyone was stunned by the quality of the voice clone. Occasional glitches — a mispronounced word, a missing intonation — were mostly imperceptible. In April, doctors equipped Bogan with a custom-built phone app that only she can use.

“I get so emotional every time I hear her voice,” said her mother, Pamela Bogan, tears in her eyes.

“I think it’s awesome that I can have that sound again,” added Lexi Bogan, saying it helped “boost my confidence to somewhat where it was before all this happened.”